Vaccine Conversations

30 01 2012

Parents have questions about the health and care of their children. It’s normal!

They want to know (for instance) what to give a child who has a high fever, when a multivitamin is appropriate, and if vaccines are safe and necessary.

It’s that last bit that has many of us searching for the words that parents want to hear. When a parent asks if vaccines are safe and necessary, it’s not enough to simply say yes. Parents want more information, and here are a few resources that will help you provide answers.

CDC has a section on their website that addresses the question of how to talk to parents and others about vaccines. There are materials for talking to specific groups, such as college-age students, healthcare workers, or pregnant women. There are materials to share with parents who are choosing not to vaccinate or who have questions about immunization schedules. There’s a one-pager for providers that’s handy to have. Basically, this site has gobs of resources—more than we have room for here—and is worth a long look.

The Colorado Foundation for Medical Care and Every Child by Two have a CE for nurses that offers “practical knowledge and skills on vaccine safety and patient communication.” It’s provided in webinar format and wraps up on 29 November, 2012. Try to get it on your calendars before then.

The Vaccine Education Center at CHOP has an excellent menu of articles written in palatable form for non-scientists. Few explain the facts behind vaccines better than Dr. Paul Offit, the Center’s director. This site is one of our favorites.

Immunization Action Coalition keeps a list of resources for those who speak with parents about vaccines. It’s a good page to bookmark.

We found a nice slideset by a nurse from GSK that provides answers to parents’ questions. It may be something you would want to share with your staff.

At PKIDs, we have several videos of parents sharing their children’s stories. Sometimes it helps to connect parent-to-parent. In addition to PKIDs, there’s ShotByShot, National Meningitis Association, and Families Fighting Flu—all of whom have videos to share.

While poking around, we found many more helpful sites, but when they were boiled down to their essences, the resources provided could be found in one of the sites listed above.

If you know of a site that has materials useful to the vaccine conversation, we’d love to hear from you in the comments.

By Trish Parnell

Image courtesy of Norman Rockwell Museum





Free Vax Ads – Please Use!

23 01 2012

Capturing the attention of teens and young adults isn’t easy. They see and hear a lot of info throughout the day and penetrating that noise with a message to vaccinate is difficult.

We developed these ads for anyone to use (see some samples below). So, feel free to use them and add your org’s name and contact info to them.

Click on an image to see a larger version then hit the Back button to return to the post:

If you have any materials you’d like to share with other vaccine educators, please add a link and/or description in the comments. Sharing such resources is a money-saver for all of us, and who doesn’t need that in today’s economy?





It’s a Rap

9 01 2012

(Written in the spirit of fun and, oh yes, Happy New Year!)

My New Year’s resolution shouldn’t bring no retribution ‘cause I’m talkin’ diminution of disease.

I wanna get the word out that a vax can be the knockout of that thing that takes you right down to your knees.

There ain’t no use in lyin’ it can hurt you ‘til you’re cryin’ and you may go into hidin’ from nursies.

But if you are a brave one and you wait until they’re all done you’ll be superhero topgun wait and see.

We’re almost at the finish let me just say I have one wish that is sure to bring you all up short you see.

This year I’d like to make it through and manage not to take from you a boatload of your nasty old cooties.

(Rewrites are welcome! Send us your version or something entirely new and we’ll post it!)





Mary Margaret’s Legacy

22 09 2011

My dad’s sister, Mary Margaret, died at age nine from laryngeal diphtheria.

One of the things Dad and I talked about when I became an immunization coalition coordinator was whether he would mind if I told his sister’s story in my work. He felt if her tragic story would help prevent anyone from losing a child to a vaccine-preventable disease, then it would be a wonderful tribute to her and it’d give her short life even more purpose.

Mary Margaret died a week before Christmas, 1927, after contracting diphtheria from schoolmates. This was three years before the diphtheria vaccine was available in the area, according to my grandmother’s recollection that came down to me through my dad.

She had home care by family, and a visit from a doc who visited the poor families, so they worried that maybe she could have had a more timely diagnosis and better care.

After her death, the family was put out of the house by the local board of health, and the house was roped off with a “do not cross” type of line and sulphur candles were burned in the house to rid it of any leftover contagion. They were treated like lepers.

Our family is and was Catholic.  Mary Margaret was allowed no funeral service (no stopping by the church) on the way to the cemetery located nine miles outside of Tulsa, Oklahoma. No last benediction or funeral rites from the church were given to her because of the contagious aspect of the disease. The grave wasn’t even marked until 1960, when my dad and his brother visited the cemetery to make arrangements for their mother’s burial. They were horrified to find it unmarked and ordered not one but two stones.

There was no money in 1927 for the family to mark it—the family, like most at the time, was living on the edge of poverty.

The summer after Mary Margaret died, my dad and uncle (ages four and five) were put on the train to Kansas City with notes pinned to their collars to let them off at Union Station there, as their aunt would pick them up and keep them for the summer—a rough summer for their parents who needed a break.

My grandparents coped as best they could, but my dad said he and his brother never saw the same sparkle in their parents’ eyes, and they couldn’t bring it back by themselves no matter how hard they tried.

Grandpa continued to work long hours as a baker, but coped by drinking. Grandma just carried on, never sharing her grief with the boys and never complaining.

My mother once talked to my grandfather (her father-in-law) about his daughter’s death, and it was the only time he said anything to her about it.

“For Christmas that year, my daughter had asked for a music box; instead, I had to buy a wooden box to bury her in,” he said, and then cried.

I have told Mary Margaret’s story to people occasionally since I have been the TAIC coalition Coordinator, and I have to tell you, even though my own grown sons are familiar with it, one of my daughters-in-law (and her mother) have bought into the false information about immunizations collected from the Internet and through their homeschooling network.

No matter what I can respectfully, carefully, or diplomatically say or try to teach, their attitudes of distrust about immunizations cannot be changed. So, their children, my grandchildren, remain unimmunized, much to my anguish.

On a cheery note, I can see the photo of Mary Margaret, the aunt I never knew, with that wonderfully whimsical orange clown nose on her face in celebration of Orange Nose Day.

And Grandma? She probably would have wanted to see something hopeful and meaningful come from the sharing of her daughter’s story. Maybe by relating our family’s story, today’s parents will realize just how serious vaccine-preventable diseases are, and make good, timely decisions about having their children properly immunized. Grandma would be AMAZED to know that several cancers can now be prevented with vaccines!

As to the diphtheria vaccine and my dad and uncle? When it was available in 1930 at the Tulsa Board of Health, Dad said his mother couldn’t get them there FAST ENOUGH to get both boys immunized. She wasn’t going to lose any more of her children to a preventable disease.

By Kathy Sebert, RN, BA/Coordinator, Tulsa Area Immunization Coalition & Tulsa Health Department employee





Vaccine Fears: What You Can Do

22 08 2011

What’s not to fear directly about vaccines? There’s a needle that someone pokes into your child. Your child screams. You tense up. What’s in there? you wonder. Viral or bacterial bits that, in ways that are mysterious to a non-immunologist, will keep your child well when intuition seems to say they ought to make your child sick.

Needles, screaming, microbial bits…these naturally would make any parent blanch. The number of vaccines has added to the fear for at least a decade, leading to non–evidence-based calls to “spread out” the schedule or reduce the number of vaccinations.

In fact, the evidence supports the schedule as it’s recommended.

The fear of vaccination is not new. Since Edward Jenner and his cowpox inoculation at the turn of the 19th century, people have latched onto the fear of the known—those needles!—and unknown—what’s in those things?

What might be considered the first anti-vaccine cartoon appeared in response to Jenner’s proposed inoculation of cowpox to combat smallpox.

The vision of cows growing out of arms is comical, but the reality of possible side effects from today’s vaccines can lead some parents to keep their children away from the doctor’s office. Indeed, this anxiety has done so since the days of the 19th century anti-vaccination leagues, aligned against the widespread use of Jenner’s smallpox vaccine.

The vaccine wars in those days were just as bitter and divisive as they are today, including an 1885 march in England in which anti-vaccination forces carried a child’s coffin and an effigy of Jenner himself. Today’s most fanatical crusaders against vaccines may not carry coffins or effigies, but death threats against those who promote vaccines for public health are not unknown.

The fact that the vast majority of parents overcame those fears and had their children vaccinated has led to some of the greatest public health successes of the 20th century. Thanks to the willingness of people to participate in vaccination programs, smallpox disappeared and polio became a thing of the past in much of the world. Indeed, people in those eras knew, often from personal experience, what these diseases could do—maim and kill—and the fear of those very real outcomes outweighed fears of the vaccinations.

But today, we’re different. In the United States, most of us under a certain age have never witnessed a death from diphtheria or tetanus or smallpox or measles. We haven’t seen a child drained of life as a rotavirus rapidly depletes the molecules she needs to live. Many of us have not witnessed the sounds of pertussis, the vomiting, the exploding lungs in an agony of infant death. Why? Because of vaccines.

This very success has, ironically, led to the resurgence of fear and misgiving about vaccines. No longer weighed against anxiety of death or disability from disease, the fear of vaccines now aligns against the bright picture of a nation of children largely free of life-threatening illness.

Without the collective memory of days when children played on the playground one day and died the next of vaccine-preventable disease, the calculus of parental fear pits only the side effects of vaccines against the healthy child. Vaccination requires intentional agency—parental agreement—to impose on that healthy child the very small risk that vaccines carry. Some parents simply are not comfortable either with that intentionality or that risk.

Feeding this reluctance is the explosion of Internet sites that warn against vaccines or disseminate incorrect information about them. The Centers for Disease Control and Prevention (CDC) has provided abundant information about vaccines, including a page devoted to countering erroneous information with facts.

This information will not move the fiercest anti-vaccine groups that lump the CDC in with pharmaceutical companies and others in an alleged conspiracy to harm millions via a money-making vaccine industry. However, it certainly helps concerned parents who simply seek to calm fears, weigh evidence, and make an informed decision about choosing vaccines over the life-threatening illness and compromised public health that result when people don’t vaccinate.

Indeed, these threats to public health have grown considerably with recent large outbreaks of measles and pertussis. The growing threat has led to calls for more stringent requirements for childhood vaccines, including dropping exemptions and requiring that all children be vaccinated over parental objections. This tactic likely would increase vaccination rates among children attending school.

But instead of strong-arming parents into having their children vaccinated, what we really need is a two-fold approach to education. First, we need sober, non-sensationalist reporting from the news media about vaccine-related stories, including stories about side effects, research, and court cases. These articles—and their sensational headlines—are in all likelihood among the prime drivers of the rumor mill against vaccines.

Second, when parents read these stories and turn to a medical professional for input, that input must come as part of a two-way communication between the health professional and the parent, not in lecture format or as patronizing. A little, “I understand your concerns because I’ve had them, too, but here’s what I know that gives me confidence in vaccines,” is considerably better than, “Your child has to be vaccinated, or you can get out of my office.”

As centuries of history attest, no efforts will completely eradicate vaccine fears. Motivations fueling anti-vaccine sentiment that go beyond information gaps range from personal economic benefit to a desire to out-expert the experts to the inertia of fear.

But a careful and persistent information campaign and outreach efforts from medical professionals in the trenches may help keep vaccination rates sufficiently high. To ensure adequate rates requires either these efforts or a resurgence of the deadly diseases that have graphically demonstrated the real balance of the threats at issue here.

Which one would we rather have?

By Emily Willingham

Image courtesy of ajc1





You and the Shingles Vaccine

14 07 2011

Who should…and shouldn’t…get the shingles vaccine?

The virus that causes chickenpox, varicella zoster, doesn’t confine its activity to childhood. For reasons that remain unclear, it can re-emerge in older age as the rash called herpes zoster, more commonly known as shingles. Just as you can get chickenpox only once, usually you also have shingles only once. But that “once” can translate into chronic, unbearable pain if a complication known as postherpetic neuralgia develops. This pain, a burning nerve pain severe enough to disrupt sleep, can last for years.

That’s why people who are eligible for the shingles vaccine should get one. But who are those people?

The short answer is, almost anyone age 60 and over. The U.S. Food and Drug Administration has approved this vaccine only for this age group because researchers have no evidence yet that it’s effective in younger groups. It makes sense because one of the risk factors for developing shingles is . . . being over 60. Another risk factor is having had chickenpox before age 1.

The shingles vaccine is not, however, a substitute for the childhood vaccines against chickenpox.

Some people in the over-60 age group should not get the shingles vaccine. Avoid this vaccine if any of the following applies to you:

  • You’ve had a life-threatening allergic reaction to gelatin or the antibiotic neomycin. The vaccine contains other ingredients, so if you’re deathly allergic to something, check the ingredients list.
  • You’re taking drugs that suppress the immune system or have a disease that does, such as HIV, because this vaccine is a live-virus vaccine.
  • You have tuberculosis.
  • You are or might become pregnant, an unlikely possibility in the 60+ age group.
  • You are moderately to severely ill, including have a fever over 101.3 F. Wait to get the vaccine until you’re better.

Can you get this vaccine if you’ve already had the shingles? Sure, even though you’re not likely to get shingles again. You can also get this vaccine while receiving the influenza vaccine.

Like any vaccine or other medical intervention, the shingles vaccine can have side effects and carry risk. The most common side effects are pain and swelling at the injection site and headache. One large research study of the safety of the vaccine found no difference in rates of negative events between the vaccinated group and the group that received a placebo (a dummy injection). A substudy within that study, however, found a slightly higher rate of serious adverse events in the real vaccine group compared to placebo (1.9% vs. 1.3%). The data did not indicate that the events were vaccine-related.

The effectiveness of this vaccine depends on the outcome in question. Studies indicate that it reduces your risk of getting shingles by about 50%. If you do get shingles, the vaccine is linked to fewer days of pain during the outbreak and shorter periods of pain for people who go on to develop postherpetic neuralgia.

By Emily Willingham





Why are Vaccines Mandated?

26 05 2011

Why does the government mandate that millions of children and adolescents receive certain immunizations for school entry?

The more people in a community who are vaccinated, the healthier that community is.  Here is how Dr. Samuel Katz, a renowned vaccine expert and a member of PKIDs’ Medical Advisory Board, explained it before Congress in 1999.

“We know too well that the level of [immunization] protection that we have now established in our children and our communities is a fragile one that depends on what we refer to as community or ‘herd’ immunity.  From the standpoint of effectiveness, modern childhood vaccines are approximately 90 to 95 percent effective.  What that means is that for every 20 children who are vaccinated one or two may not develop a sufficient immune response [or antibodies to fight an infection].

“It cannot be assured that these children will be protected from the virus or bacteria should they encounter it at school, at a playground, at a shopping mall, or at their church daycare.  However, if sufficient numbers of children in a community are immunized, the vaccinated ones protect the unprotected by effectively stopping the chain of transmission in its tracks and drastically lowering the probability that the susceptible child will encounter the bacteria or virus,” said Katz.

Community immunity also helps protect children and adults whose immune systems are compromised or weakened because of another illness or old age.

“As long as the great majority of children receive their vaccines, we will be able to maintain our current level of disease control,” Katz explained.  “However, should the level of community protection drop to the point where the viruses and bacteria travel unimpeded from person-to-person, from school-to-school, and from community-to-community, we instantly return to a past era when epidemics were an accepted part of life.”

America experienced such an outbreak in 1989-91 with the resurgence of measles.  There were 55,622 reported cases mainly in children less than 5 years of age, more than 11,000 hospitalizations and 125 deaths.  States do allow personal exemptions, so parents can choose not to vaccinate their children, but those exemptions carry risk to the child and the public’s health, emphasizing the importance of community immunity.

An article in the Journal of the American Medical Association found that, on average, those children who were exempted from immunizations ran a 35-fold greater risk of contracting measles compared to those who were nonexemptors.

Not only are these children at greater risk of disease, their infections can be the spark that ignites a disease outbreak in a community.

According to Dr. Katz, in the late 1960s and early 1970s, despite the availability of a safe and effective measles vaccine, the United States continued to experience regular epidemics of measles.  Left to individual choice (as opposed to government mandates), only 60 to 70 percent of the community was immunized.

That coverage failed to provide adequate community immunity to prevent an outbreak.

“States without school immunization requirements had incidence rates for measles significantly higher than states with these requirements,” noted Dr. Katz.  “Recognizing these data, other states (not the federal government), quickly adopted similar requirements.  These requirements are supported by the American Academy of Pediatrics.

“The results are striking,” he added.  “Before we had a measles vaccine, an estimated 500,000 cases of measles were reported each year.  In 1998, there were 89 cases of measles in the United States with no measles-associated deaths.  Most counties in the United States were free of measles.  However, we have learned that nearly all of the cases of measles that did occur in the United States were imported from other countries.  This would not have been possible without the “school exclusion” statutes that now exist in every state.  While we hear dramatic stories of exotic diseases that are just a plane ride away, the importation of vaccine preventable diseases into a susceptible population is much more frightening.  Should we allow our community immunity to wane, we will negate all the progress we have made and allow our communities to be at risk from threats that are easily prevented.”

Compulsory vaccination laws in the United States have repeatedly been upheld as a reasonable exercise of the state’s compelling interest even in the absence of an epidemic or a single case.  As the U.S. Supreme Court held in 1905 in the case Jacobson vs. Massachusetts:

“ …in every well-ordered society charged with the duty of conserving the safety of its members, the rights of the individuals in respect of his liberty may at times, under the pressure of great dangers, be subjected to such restraint, to be enforced by reasonable regulations as the safety of the general public may demand.”

The Supreme Court makes clear that “the liberty secured by the Constitution of the United States to every person within its jurisdiction does not import an absolute right in each person to be, at all times and in all circumstances, wholly freed from restraint.  There are manifold restraints to which every person is necessarily subject for the common good.   [Liberty] is only freedom from restraint under conditions essential to the equal enjoyment of the same right by others.”

This is one in a series of excerpts from PKIDs’ Infectious Disease Workshop. We hope you find the materials useful – the instructor’s text and activities are all free downloads.

Photo credit: lawtonjm








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