No More Meningitis

29 09 2016

Parents of Kids with Infectious Diseases (PKIDs) announces the launch of its national educational campaign, “No More Meningitis.”

The campaign warns parents that meningitis is a rare but deadly infection that can kill within hours. If a person is lucky, it lingers, taking a leg or a kidney but leaving them with their life.

Taking the steps to prevent infection is a must for families.

Anyone can become infected, but it’s most common in babies under the age of one, and in teens and young adults between the ages of 16 and 21.

The outbreaks of meningitis at university campuses are a reminder that there are vaccines to fight multiple strains, but they’re not being fully utilized.

Meningitis can be a swift and vicious infection, but each year, only about half of teens get immunized against this disease.

serogroups

“As parents, we need to make sure our babies and our teens and young adults get the protection they deserve. Our older kids are at greater risk of becoming infected with bacterial meningitis when living in close quarters with large groups of people, such as youth campers, dorm residents, or military barrack inhabitants,” said Trish Parnell, director of PKIDs.

Also at risk are individuals whose immune systems are compromised, travelers to regions where meningococcal disease is common, and people exposed to others who are currently infected and infectious.

According to the Centers for Disease Control and Prevention (CDC), about 600-1,000 Americans get meningitis every year. Of those infected, 10-15 percent will die. Even if the disease is quickly diagnosed and treated, 11-19 percent of survivors will experience life-changing consequences, such as loss of hearing or limbs, strokes, or seizures.

Because meningitis initially mimics flu symptoms, it can be hard to diagnose it in time to save a life.

The viruses and bacteria that cause meningitis can spread in many ways, including through a kiss or a cough, a sneeze or a sip on a shared straw.

The campaign stresses these simple ways to avoid infection:

  • Wash your hands.
  • Keep your hands off of your nose, mouth, and eyes.
  • Don’t share items like food, forks, lipstick—anything that can transfer germs from another person’s mouth to your own.
  • Get immunized. There are several germs that cause meningitis, and there are several vaccines offering protection. Ask your provider which vaccines are appropriate for your age and immunization history.
  • Keep your immune system strong by doing these things—exercise, eat healthy, and get plenty of sleep.
  • Cover your coughs and sneezes to avoid spreading infections that you may have.

“Too many parents, including me, have lost children to this disease,” stated Lynn Bozof, President of the National Meningitis Association. “I don’t know how my son contracted the disease, but my guess is that someone, who was a carrier, coughed or sneezed on him. It’s as simple as that. Common-sense precautions, and most importantly, vaccination, are a necessity.”

PKIDs’ “No More Meningitis” campaign reaches out through social media platforms and a website, http://www.pkids.org/meningitis, to educate the public on meningitis and how to prevent infection.

Through the use of videos, posters, and fresh informative materials, the public’s questions about meningitis are answered with clarity, and the need to use immunization as a strong tool to prevent infection is made clear.

“The mission of PKIDs is to educate the public about effective disease prevention practices,” said Parnell. “With the ‘No More Meningitis’ campaign, PKIDs hopes to prevent the spread of meningitis and protect our children, no matter their age.”

Please visit our site and use the images and other materials to encourage your community to immunize against meningitis.





NFID Shares New Meningitis PSA

16 06 2016

NFID has a new PSA that we love.

There are lots of things in life that we may regret, but protecting ourselves against meningitis isn’t one of them. Get immunized against the various strains of meningitis — your life is precious.

Share the video, save a life!





Immunize Your Kids Against Meningitis B

8 06 2016

abby FB5 fall





New Year, New Immunization Schedule

18 02 2016

Immunizations are good for grams and gramps, moms and pops, and little ‘uns of all ages. But, wow it’s hard to keep up with who’s supposed to get what, and when they’re supposed to get it.

Every year about this time, the CDC puts out a revised immunization schedule. I’m not sure how many people wait on the edge of their seats for the schedule to come out. I think it’s one of those things that we should care about, that some of us actually do care about, but that’s not as exciting as waiting for the next Star Wars movie to come out.

Exciting or not, immunizations do help keep us healthy. They’re important! So, let’s briefly go over the changes for this year.

For all of us, the usual vaccines are on the schedule, plus there are a few vaccines that need particular attention.

In addition to the existing meningitis vaccines, there are currently two vaccines that protect against meningitis B. The ACIP (Advisory Committee on Immunization Practices) approved the recommendation that kids 10 years of age and older who are at higher risk for infection should get vaccinated against this strain of meningitis.

Young people ages 16-23 years who are not at higher risk for infection may get vaccinated, and should check with their providers to see about doing so.

We strongly encourage young people to protect themselves against meningitis B through immunization, unless their providers determine there are medical reasons not to do so.

There is a vaccine that protects against nine strains of the human papillomavirus. There are also vaccines available that protect against fewer strains of HPV, but we believe it’s important to protect kids as thoroughly as possible. We suggest you talk to your provider to see which HPV vaccine you or those you love should get. This vaccine is typically given between ages 11 and 12, but as with all vaccines, you can usually follow a catch-up schedule if you miss some immunizations.

There are more vaccines on the schedule. What you should get depends on many factors—check with your healthcare provider about what you need to stay up-to-date on your immunizations.

For a complete list of current recommendations, click here.

 

 

by Trish Parnell





No More Meningitis

24 04 2015

Abby says keep feet T

We don’t really need to say more.





Gambling With Risk Is Not Worth It

6 04 2015

I can’t think of a vaccine-preventable disease that kills or permanently damages 100 percent of those infected.

It’s a safe bet that if there were such a disease, we’d all be vaccinated against it. We’d all demand to be vaccinated against it.

The diseases we can prevent vary in how they affect us. Some, such as measles, will infect almost every person not protected by a vaccine. They’ll probably not feel good, but the diseases won’t kill or permanently damage every person.

In the case of measles, about one out of 1,000 infected kids will experience swelling of the brain, and one or two will die from the infection.

So not every person will be killed or permanently damaged.

Meningitis may infect a lot of people. Most are walking around with the bacteria in their nose or throat but they’re not going to get sick.

Rarely, someone will become infected and will get sick. And when that happens, it can cause brain damage, loss of hearing, loss of limbs, or death.

But it’s another disease that’s not going to kill or permanently damage everyone infected.

We could go through each vaccine-preventable disease and talk about how many infected people will have permanent damage or die from the infection. In all cases, the majority of those infected will live, and they will have no permanent damage from the disease.

I still get my kids vaccinated against every disease for which there is a vaccine.

No one is more precious to me than my girls and every parent I know feels the same about their kids. Dad and daughter on beach

I can’t risk either of my children living with or dying from an infection I could have prevented with a quick vaccination.

I’ve been reading about vaccines for two decades. We have more scientists on our advisory board than I can count, and I’ve been listening to them talk about every aspect of vaccines and vaccinations for two decades.

There is nothing that is going to happen from vaccinating my girls other than a sore arm or short fever. I can live with that. More to the point, they can live with that. The risk for my girls is not in the vaccine, but in the not vaccinating.

When my girls were tiny, I buckled them in before driving anywhere, and as they grew older, I wouldn’t take the car out of park until they were buckled.

Of all of the cars on the road at any one time, very few of them will be in an accident. And few of those accidents will result in permanent damage or the death of a person. We all know that. We still buckle our kids in before we leave the driveway.

It doesn’t matter how small the risk is to our kids, if we can protect them, we will.

The next time you hear a friend say they’re not going to vaccinate their kids, or they’re going to wait and stretch out the vaccines over time, take a minute to talk to them about why we practice prevention, even when the odds are in our favor.

 

by Trish Parnell





What Is Meningitis, Anyway?

27 01 2015

At PKIDs, we help families affected by infectious diseases, and we work to educate ourselves and others about these diseases. Our goal is to prevent infections.

In 2015, we’re turning the spotlight on meningitis, or more accurately, meningococcal disease.

Meningitis is scary—and confusing. For instance, if I say that I have meningitis, it sounds like I’m saying I’m infected with a No More Meningitisgerm called meningitis. But, there is no germ called “meningitis.”

Adding to the confusion is the fact that we tend to use that term loosely for what should be called “meningococcal disease.”

Meningococcal disease causes meningitis, and it may also cause blood poisoning (septicemia).

WHAT IS MENINGITIS?

Our brains and spinal cords are protected by three layers of tissues, one on top of the other, along with a thin river of fluid that runs between the middle and bottom layers. That river, the cerebrospinal fluid, helps the tissues cushion the brain and spinal cord. It also brings in food and takes out trash from the brain.

These tissues that protect our brains and spinal cords are called membranes, or meninges. The whole setup reminds me of a hand in a baseball glove; the hand and wrist are the brain and spinal cord, and the layers of the glove are the meninges.

When I say that I have meningitis, I’m saying my meninges, those tissues layered over my brain and spinal cord, are swollen or inflamed.

This swelling usually causes symptoms that are typical and a tip-off that a person is suffering from meningitis. Those symptoms include fever, a stiff neck, and a severe headache.

There are other symptoms that may be happening, but those three are the most common.

Lots of things can cause meningitis, and they’re not all germs. But the cause of most concern is bacteria.

When certain bacteria, such as Neisseria meningitidis, cause meningitis, it’s called bacterial meningitis.

The bacteria can get into the bloodstream, cross the blood-brain barrier, and cause meningitis, as described above. They get into the river, the cerebrospinal fluid, and multiply like crazy, spitting out poison. The tissues react to the poison by becoming swollen and inflamed. If it gets bad enough, the swelling may cause seizures, or even brain damage.

WHAT IS BLOOD POISONING?

When bacteria such as Neisseria meningitidis get into the bloodstream, they can cause septicemia, or blood poisoning.

The poison released by the bacteria into the bloodstream makes the immune system wake up and start fighting. This war between the bacteria and the immune system can cause inflammation, or sepsis, which in turn can cause blood clots, and it may stop oxygen from getting to the organs. If this happens, the infected person may lose limbs, organs, and sometimes, his or her life. This can happen within hours of initial infection.

HOW TO PREVENT MENINGOCOCCAL DISEASE

The bacteria that cause meningitis, and possibly septicemia, can spread in many ways, including through a kiss or a cough, a sneeze or a sip on a shared straw.

To avoid infection, we do the same things we do when we’re trying to avoid influenza.

  • Wash our hands.
  • Keep our hands off of our nose, mouth, and eyes.
  • Don’t share items like food, forks, lipstick—anything that can transfer germs from another person’s mouth to our own.
  • Get immunized. There are several germs that cause meningococcal disease, and luckily, there are several vaccines to protect us. Ask your provider which vaccines are appropriate for your age and immunization history.
  • Keep our immune system strong by doing all those things we hear about: exercise, eat healthy, and get plenty of sleep.
  • Be responsible and cover our coughs and sneezes. We don’t want to spread infections that we may have.

There are certain groups that are at greater risk of becoming infected with meningococcal disease: those living in close quarters with large groups of people, such as youth campers, dorm residents, or military barrack inhabitants; individuals whose immune systems are compromised; travelers to regions where meningococcal disease is common; or people exposed to others who are currently infected and infectious.

The harm that can come from this infection is so great, it’s simply not worth the risk. We all need to get ourselves and our loved ones in to see our provider for vaccination against this truly horrible disease.

by Trish Parnell





Meningitis B Vaccine – Who Gets It?

19 01 2015

My whole life is on the Outlook calendar. Birthdays, meetings, to-do lists, reminders—when anything pops up, it goes on the calendar. Doesn’t matter if it’s four days or four years from now, it gets noted.

In a few months, my younger daughter will be 16. If you sat at my computer and clicked to that day, you’d find two things: 1) Bug’s birthday and, 2) Call to get mening booster for Bug. (Don’t tell her I called her Bug in this blog, but that is what you’d read in my calendar. It stands for Love Bug.)

Meningitis, or more accurately, meningococcal disease, is the real version of the monster under the bed. That’s how scared I am of this disease.

Love Bug - the early years.

Love Bug – the early years.

It’s not as common as flu, but when it strikes, it can kill or do horrendous damage to the body within hours of the first symptom appearing.

In the US, we have vaccines we use against several strains of the disease.

In the fall of 2014, the FDA approved a vaccine against serogroup B, a strain not found in our current vaccines. There’s at least one other vaccine against serogroup B that’s waiting for approval from the FDA, and I’m guessing that approval won’t be long in coming.

Because we haven’t had a vaccine against serogroup B, we’ve left our at-risk populations defenseless. When Princeton and Santa Barbara had their meningitis outbreaks in 2013, the culprit was serogroup B.

But, the good news is that the ACIP (Advisory Committee on Immunization Practices) will now take a look at the vaccine that protects against meningitis serogroup B and decide what recommendations it will make. The ACIP exists to make “recommendations on how to use vaccines to control diseases in the United States.”

It could be that the ACIP will decide to recommend that all young people ages 10 to 25 should be vaccinated. Or, they may recommend that the vaccine only be given in the event of an outbreak.

The CDC has a specific definition of outbreak when it comes to meningitis, and that is: An outbreak occurs when there are multiple cases in a community or institution over a short period of time. Specifically, an outbreak is defined as three or more cases of the same serogroup (“strain”) occurring within three months. Sometimes having just two cases in a school or college can meet the outbreak definition.

For a more precise definition, check out this Morbidity and Mortality Weekly Report (MMWR) on the Evaluation and Management of Suspected Outbreaks of Meningococcal Disease.

My personal feeling is that we’re a country that can afford to protect ourselves against vaccine-preventable diseases and we should take advantage of that fact. Why wait until an outbreak to start vaccinating? Let’s get the at-risk populations vaccinated and not worry about an outbreak.

I suspect that as discussions ensue, the cost of vaccinating pre-outbreak will be a major factor in determining what the official recommendations will be. After all, the federal government does have a budget. Maybe a few more zeroes in their budget compared to yours or mine, but still.

I know that other interests are clamoring for their share of the pot. Alzheimer’s research, foodborne illness, alcohol poisoning—everyone deserves some of the health and medical dollars available. As do those with other interests, such as agriculture, space exploration, or marine biology.

But still.

Preventing meningococcal disease has always made more sense to me than hoping treatment works and burying those for whom it does not.

I’d like to hear your thoughts on this. We will share them with ACIP members as they meet to discuss what recommendations to make for the new vaccines.

 

 

by Trish Parnell





One Day, on the Way to the Army

24 04 2014

Today is World Meningitis Day, and the start of World Immunization Week. Are you young and healthy? Stay that way! It’s Your Choice, so choose to get immunized and get on with what life has in store for you.

Abby Blanco-Wold was a young woman on her way to the Army when she was attacked by meningitis. This is Abby’s story, as written by her.

 

TWO DAYS TO GO

Two days to go, and I would have been gone, off to the ARMY . . . Tuesday at dawn.

Out to the gun range my dad and I went, I did really well, to our amazement!

I wanted to shoot a gun once before basic training, the old men that were there found it quite entertaining.

Abby before meningitis changed her life

I had this slight headache throughout the day—didn’t recognize the faint scent of death’s bouquet.

Later that night, out with friends one last time, I threw up by a building, but then I felt fine.

We went home anyway, but stopped for a treat. I didn’t even feel bad enough not to eat.

I awoke in the night, throwing up once again . . . except this time throwing up took forever to end.

So I went back to sleep, but when I arose, intense pain was all over, from my head to my toes.

We need to go now, something’s not right. Upon changing my shirt, came the real fright.

Fever, throwing up, aches and pains, purple spots. The familiarity is chilling. Meningitis, I thought!

To the hospital my friends and I immediately rushed. Oh my God, if it’s true, my family’s going to be crushed!

Meningitis it was, but I already knew. I deteriorate quickly—my feet are both blue.

My parents arrive, “Mom, I have to go pee,” but not a drop would come from my failing kidneys.

I said to the doctor, “I know I might die, but can I have some pain medicine so I don’t have to cry?”

So, here I am in this bed instead, more worried about being AWOL than being dead.

In a war against nature, my body will try to fight off these enemies, so that I don’t die.

In this ICU, my family will weep, counting the moments that I am asleep.

Many of my doctors will quickly be stunned, watching my body grow increasingly rotund.

One by one my organs start to shut down; my urine is now coming out blackish- brown.

Covered all over in dark purple spots, as my vessels are littered with millions of clots.

Soon I can no longer breathe on my own, and more IVs into my body are sewn.

A ventilator’s my new buddy, I guess. How much longer can my body handle this stress?

This struggle is one that I simply must win, but things are so bad, more family flies in.

My priest comes to the hospital to say a prayer. My parents and brother are so numb they just stare.

He gives me just one last sacrament, as my body revolts, to my detriment.

Are they right, my last rites? Will tonight be my forever goodnight?

Suddenly, my blood pressure drops so low and so fast, my heart almost stops.

I am so, so very tired of this fighting, but I won’t give up—sorry that it’s so frightening.

Today, things aren’t good, the attending can’t lie, twenty percent chance to live, and that’s high.

Both my insides and outsides are going crazy. Now I’m in a coma, and my adrenals are lazy.

My prognosis looks so terribly bleak. How strong will my family be? Or how weak?

Am I allowed to die? Will you all fall apart? Will you succumb to the pain of your breaking hearts?

A few days later, it comes, a faint beacon of light. Can a miracle save me from this morbid plight?

Slowly but surely from the ventilator I’m withdrawn, and most of my organs start to turn back on!

I lay in this bed, comatose still. Reality sets in, but survive, yes I will!

I hesitantly, emerge from my sleep to hallucinations, pain, a machine’s constant beep.

I wonder, what could have happened to me? I was out for two weeks—how could that be?

I’m hurriedly transported to a new room, but I cannot sit up or hold on to a spoon.

Surrounded by so many balloons, gifts, and flowers, and cards that I read for hours and hours.

Everyone is here rejoicing my life, while knowing my future holds plenty of strife.

Just lying here the pain is so bad, it seems unbearable for my mom and my dad.

My body’s covered with open wounds that need care. An open bed in pediatrics? I’ll be right there.

My first ambulance ride reveals my yellow streak, and I need lots of help, because I’m so weak.

In my new room, tons of doctors I meet, their topic of interest—my gangrenous feet.

I finally see them completely unwrapped, “please be careful, and don’t touch them,” I snapped.

After surgery I’m left with no toes, heels, or skin, so I stayed alive—but did I really win?

Two months with surgery every other day, please let my parents and my brother be ok.

Eventually the big decision day comes—bilateral below knee amputee? Now I’m one.

abby2

So my life goes on and prosthetics I wear, but my family will never get over the scare.

There in that room . . . I was just 22, but oh how through the experience I grew!

Meningitis information I soon eagerly sought. I discovered that there’s a vaccine—what a thought!

The knowledge of inner beauty did finally come, and I realize, somehow, the battle I won!

But in my head, I know some will die, and many families will forever cry.

And in my heart, I am in disbelief that a shot could have prevented all of this grief!





A Brother’s Love

14 03 2014

My older brother, Evan, and I were 12 1/2 months apart.  We were the “twins” who weren’t really twins, but who shared a bond so close, that I still can’t believe he is gone.

I never needed to worry about having friends around, because I always had Evan.  We both loved sports, and I have the greatest memories of growing up playing baseball, soccer, and basketball together.  It was a great family time, and one I hope to impart to my children.

Evan wanted to be a pitcher on a college baseball team, and my dad took him around to different colleges in Georgia.  After tryouts at Georgia Southwestern University, Evan was asked to join the team as a walk-on player.

Me and Evan

Me and Evan

He was at a small university, but he loved it and loved his team.  I was attending the University of Georgia, and I was so proud of my brother for following his dream.  Both of us had plans to become orthopedic sports physicians and practice medicine together.  We would get married, our children would not only be cousins but best friends—everything was planned out, everything was in motion.

Then, Evan came down with a violent migraine, so we thought.

The ER physicians diagnosed him as having a “little virus,” but it wasn’t a “little virus.”  It was bacterial meningitis, or more specifically, “meningococcal disease.” My parents were told he had a 5% chance of survival.

I can only imagine, now that I am a parent myself, what horror they must have felt hearing that their son might die.  I was on spring break with some friends in Florida, and my parents couldn’t reach me until much later that night.  I immediately left to drive to the hospital where Evan was being treated.

In a spirit of youthful optimism, I felt that if Evan knew I was by his bedside, he would rally, just as each of us could always get the other one to rally.

But this horrible disease was stronger than all of the prayers and love being sent to Evan.  My parents and I watched the disease ravage Evan’s body,  as gangrene set in on his arms and legs.  We watched the machines monitoring Evan, willing the numbers to be stable, for some sign of improvement.

As Evan was transferred to a third hospital, a burn unit, we were told that Evan had a 1% chance of survival.  I remember asking my mom about life after death.  I didn’t understand how my brother could be so sick.  Evan went in for surgery to try to save his life, and both arms and legs were amputated.

That still wasn’t enough.

I watched my brother, in a medically induced coma, lie in bed with stumps, his face and body bloated from kidney failure.  I cried, I prayed, I begged.  I would go listen to music in my car, to try to escape from the reality of what was happening.

Then, Evan suffered 10 hours of grand mal seizures, and that caused irreversible brain swelling, and a herniated brain stem.

My brother, who I loved so much, was brain dead.

We all watched as Evan was disconnected from life support, flat-lined, and carried away in a body bag.  Those are my last images of my brother.

I missed that quarter of school, because Evan had been in the hospital almost a month.  When I went back, it was with a renewed determination to be a doctor.  I did get admitted to medical school, and when I graduated, I fist-pumped my arm, and said to myself, “Evan, I did this for both of us.”

I still talk to Evan, I still miss him so much, and I carry his memory with me everywhere.  My daughter’s middle name is Evan. When I got married, I did not have a best man, because that spot was reserved for Evan.

When my parents and I found out that Evan’s death could have been prevented with a vaccine, that was being routinely used in the military, it just made no sense.  Why hadn’t any of us been told about the vaccine?

Needless to say, I am a staunch vaccine advocate, and as a primary care physician, I make sure that all of my patients are up-to-date on all CDC-recommended vaccinations.

It really is your choice, and your life. Take control and protect yourself against infections by getting immunized.

by Ryan Bozof